The Jersey Haemophilia Group was founded on 1st March 1973 by the late John and Beryl Picot to provide support to local sufferers and their families, education about the condition and its effect, and raise funds for research.
The Group is registered in the Royal Court of Jersey and has as its patron The Earl of Jersey.
Haemophilia is an inherited blood disorder affecting the ability of the blood to clot. This in turn leads to problems of joint mobility and other health problems.
In addition to providing financial and general support to local sufferers and their families, the Group has over the years donated specialist equipment to the General Hospital and supported the Katherine Dormandy Trust for research into Haemophilia and allied blood disorders, at the Royal Free Hospital in London.
We raise our funds by donations, sponsored activities and a monthly “100 Club” supported by friends and family of sufferers in Jersey.
We are pleased to hear from non-members who may be sufferers, carers or require further information about our activities or need assistance.
The range of bleeding conditions that are managed in Jersey include:
- Haemophilia A (Factor 8 deficiency)
- Haemophilia B (Factor 9 deficiency) - also termed Christmas Disease
- Factor 7 deficiency
- Factor 11 deficiency
- Inherited Von Willebrand's Disease (VWD)
- Acquired (auto-immune mediated) Von Willebrand's Disease
- Platelet Storage Pool Disorder ("Lazy Platelets")
- Gray Platelet Syndrome
- Bernard Soulier Platelet Disorder
- Glanzmann's Thrombasthenia